This morning I went to a support group for people dealing with
dementia and Alzheimers. It was a group of about 10 people, the leader of which was
actually an old friend. Surprise, surprise. He had come to the group because
his mother died of Alzheimers, and I guess he just stayed on to be part of the support
system. His co-leader was extremely knowledgeable about everything. She has a
mother with Alzheimers and a sister with a different psychiatric problem, so she is
dealing with it on two levels.
There was a woman in the early stages of Alzheimers, and a man with
Louie body dementia (which is Alzheimers paired with Parkinsons). Both of those
people are still high functioning and able to live independently and are still driving,
though the man was encouraged to give up his car. The rest of us were dealing with
loved ones in various stages of dementia or diagnosed Alzheimers.
There was the older man who moved with his wife to the University
Retirement Community, the Cadillac of assisted living facilities. He said that he
was attracted to URC because of the many, varied activities that they offer. But his
wife has not left their apartment in the 6 months they have lived there. That made me feel
better because that pretty much describes my mother, though she does go to the dining room
and sometimes goes to the table where they work puzzles, but nothing else.
There was a woman whose mother was just moved into assisted living
back east. She is here and her brother lives 2 hours away from Mom. She's
feeling great guilt for being so far away, and also still suffering grief over having to
pack up the family home. She seems not to be getting much support from the rest of
her family and I suspect she will, like me, return to this meeting next month.
There was a man whose wife is in end stage Alzheimers. He has
obviously been coming for a long time and was mostly there just to be a part of the group.
The last woman is taking care of her husband, also with Alzheimers.
I had to leave before she had a chance to speak much, but assume I will get to know
her in the future, since she seems to be a long-term member as well.
The dynamic of the group was wonderful. Each of us with
immediate concerns got a long time to tell our story and get feedback. I know there
is nothing anybody can do, but being with people who all understood and who cared
was such a wonderful feeling.
From there, I went to Atria for my weekly lunch with my mother.
I've said it before and I'm sure I will say it again many times, but there are
perks to dementia. She barely remembers our fight last night, does not remember
yelling at me and hanging up on me. I laid out for her the new rules, which are that
she is going to do her own laundry, but with my help, so she won't feel that anybody is
taking her clothes and leaving her with clothes she does not recognize.
I told her I would take her shopping to get new clothes and when
faced with the choice of going to a regular store nearby and paying full price, or going
back to San Rafael to the thrift shop where she worked for so many years to shop there,
she decided she really didn't need any new clothes after all. She did try to bring
up all of those unfamiliar clothes and I just told her that I wasn't even going to discuss
them with her any more and that she could do what she wanted with them.
Then we went to the dining room and had a very nice lunch with my
friend Peggy and another woman. I was pleased to see how many people my mother
greeted coming into the dining room. That was a very good sign. At one point she had
to sign a ticket for me to eat there and she couldn't remember her name. I thought
she was kidding, but she wasn't. When I told her it was Mildred she wrote that and
didn't add her last name because she couldn't remember it. That hasn't happened
before, that I am aware.