...we ran into Margaret, with whom I used
to eat whenever I had lunch there (now her table is usually full). She
was happy to hear that my mother was going into the memory unit because she
has noticed that she has declined a lot in the last few months.
Journey Through Dementia
Wednesday, May 10, 2017
Tuesday, May 9, 2017
Dog Day Afternoon
Walt and I decided to go to Atria in the
afternoon. I thought I would bring Lizzie with us so she could
distract my mother while Walt was in her bedroom measuring furniture.
As it turned out, no sneaking was necessary since she was sitting in the
lobby across from the dining room, so I just took Lizzie down to visit her
while Walt went off with his tape measure to the apartment.
My
mother has always loved dogs and she was happy to see Lizzie, who was just
so good, so gentle and so happy to have someone make a fuss over her.
I lost track of how many times my mother
asked if Lizzie was our dog or not and how long we'd had her, but it was
nice to have her distracted and to have something to talk about.
There are a lot of dogs who live at Atria and
I've gotten to know many of them. There is, for example, a Boston Bull
terrier named, think, Molly, who lives across the hall. There is
a sign on the door of that apartment letting people know that there is a dog
inside and what the dog's name is.
Dogs always attract attention and having
Lizzie in the lobby was a great magnet for lots of people who wanted to pet
her. One woman told us about her dog, who had lived at Atria for a few
years and now lives with her daughter, but the woman keeps a fenced in yard
for when the dog comes to visit.
What
was strange about the day was that I swear almost every dog who lives in
Atria came by while we were sitting there.
Elizabeth is my favorite. She's a
lovely Dalmatian and everybody loves her, including, apparently, Lizzie.
There was little Chita, a long-haired
Chihuahua looking dog who was as energetic was Polly but didn't bark.
There was also the dog I have called a
mini-Lizzie because she looks exactly like Lizzie if Lizzie had been
bleached and shrunk. The two dogs' tails wags furiously and they
really wanted to play with each other.
My favorite King Charles spanial walked by
and both dgs wagged at each other from across the hall, but the person on
the other end of her leash didn't let her come over to sniff butts.
Walt finally joined us, having finished
measuring everything. My mother didn't recognize him and I'm not 100%
sure she ever knew who he was. She also looked confused when I talked
about Ned and didn't have a clue who that was, and when I explained he was
her grandson, she waved her hand and let me know she didn't know what I was
talking about (Ned is meeting us at a rose garden in Sacramento tomorrow so
we can take her to lunch there and let her enjoy being surrounded by roses).
She did, however, enjoy looking at the
picture of Brianna carrying the foodball that I posted yesterday.
Usually when I show her pictures like that she says 'who is that?' but today
she just talked about the photo as if she knew who I was talking about.
You just never know from minute to minute who she is going to remember and
who she is not.
But the best part of the day was just
watching my mother interact with Lizzie and Lizzie seeming to enjoy it.

I don't know if dogs can visit in memory care, but if they can, I think I need to bring Lizzie more regularly. It's not only good for my mother, but for the people around her as well...and Lizzie's a great dog to do it because she's so calm and loving
Tuesday, May 2, 2017
Hands
There is one characteristic of my mother's that I hate and
that is only getting worse as she gets older. She is a very vain
person. She always has been. She is from a family of 10, 7
girls, and to be honest, none of them would compete for Miss America.
But for a long time she was the only one who was "citified," who moved from
the country to the city, and who, eventually, was taken under the wing of my
grandmother whose friends were rich ladies who dressed well and knew how to
set a proper table and all those things that go with a certain level of
society. We weren't in that level of society, but my
grandmother spent her life trying to live up to it.
I don't remember ever waking up in the morning and seeing my
mother without full makeup. The first thing she did every day was to
get up, go into the bathroom, and put her make up on. She might be
cooking breakfast in her bathrobe, but her makeup was on. I don't
think she learned that on the ranch where she grew up!
For most of her life, she went to the beauty parlor every
week so there was rarely a hair out of place. Surprisingly she didn't
have professional manicures that I remember, but she was always doing her
own nails.
Now, at 97, she doesn't have the same routine. She can
walk about with bed hair, looking like the Wicked Witch of the West and it
doesn't bother her, but she is obsessed with her hands.

When I left Atria today, I realized I had spent one hour
talking (or listening) about her hands. She's mad at them, you see.
She hates how they look, hates the ropy look of her veins and especially the
brown spots. She picks at them and hits her hands and calls them
stupid.
Showing her that my hands look similar to that doesn't help.

After she talks to and scolds her hands for looking so old,
then she examines her arms and slaps at the brown spots on her arms.
Stupid, stupid, stupid! she tells her arms. And then it is back to her
hands again.
She will change it up a bit to tell me how ugly her nails
are.

My cousin gave her a manicure recently but it looks like she
has filed the nails down so they are not the way they looked when she had
the manicure. They aren't chipped or cracked, she just doesn't like
the way they look.
Then she goes back to examining her hands and how she hates
them. This is a conversation we have almost every time I visit her,
but today it was a conversation that went on for literally an hour.
She finally told me that she just realized her shoes had
holes in them and I knew it was time to go home before I went stark raving
mad.

The one brief break from the hour-long diatribe about her ugly hands was when she asked me where the little girl was. "What little girl?" I asked her and she said "You know. The cute little girl who is always here." Not sure where THAT came from!
Monday, May 1, 2017
Power of Attorney
There is a lot more "power" in that term than the title that
we sometimes throw around would suggest. I felt very powerful, signing
away all my mother's personal rights in preparation for her admission to the
memory care unit next month.
She's going to be very upset and I am having nightmares
trying to figure out how to make it all go as smoothly as possible for her.
It reminds me of the weeks leading up to her move to Atria four years ago.
It was the longest conference I've had with Richard, the
General Manager of Atria. We have had our moments when I had to
confront him about this or that thing, but this was a congenial half hour we
spent together. I kinda sorta liked him, though when he talked about
hoping my mother's rent will be reduced once the tax rate goes from 30% to
15%, I figured that politics was not going to be a good topic for us to
discuss.
So now all the decisions have to be made, and behind my
mother's back. She was not happy when I mentioned the move to her (I
knew she would not be) and said she would "think about it" and "let me
know." By now she has forgotten. But I wanted it to be said.
Friday, April 28, 2017
The Principal's Office
Well, it wasn't really like going to the principal's
office, especially since the two people I was meeting with were young enough
to be my granddaughters. But it was a serious meeting.
They have noticed, as have I, a decided step down in my mother's cognitive
function. They feel it is time for her to move to the memory care unit
and I wholeheartedly agreed.
We talked about particulars and dates. I asked about
how this ordinarily works and they said they find it better if someone takes
her out for the day while others move her stuff so that when she returns,
she goes directly to the memory care unit and, God willing, her memory
deficits will cause her to forget that she was ever anywhere else.
So I hope to do this while Jeri is here next month, because
things are usually better when Jeri is along, though today she could not
remember either Ned or Jeri, but that will pass when she sees them again
One of the HUGE advantages is that we can move her into an
apartment that is as bare as possible and maybe she will stop
worrying about "all this crap." All the crap will be packed into boxes
and stored until things settle down and I have chance to go through them.
I will also move most of her furniture into storage, since she's moving into
a one-room studio that is small enough that I'm thinking of getting her a
new, smaller bed (she now has a king size).
I took another tour of the memory unit, visiting the 3
apartments that are currently vacant. I chose the largest (slightly
larger) and brightest and will sign paperwork on Saturday. I then told
her what we were going to do, knowing that she would immediately forget.
I also knew that she would not (a) understand or (b) approve. I was
right, but I didn't dwell on it. I just wanted it to be said
once.
So all that done, I went to the apartment and found her
sleeping in bed, as usual. I had bought more "junk food" for her for
when she doesn't want to go to the dining room (cookies, nuts, and
chocolate). I convinced her that she would like to go out to a
restaurant for lunch for a change. And I actually got her up, dressed,
and outside. She was pleased to see the rose garden in front of the
building.
Then we drove around looking at gardens in Davis. It
seems every other house in town is having gorgeous displays of my favorite
wildflower - poppies!

We passed by my house (which she has never seen before--and
why have I never invited her to come and visit?) so I could show her the
irises growing in the front yard. They came from bulbs I took out of
her sister's garden after Marge's death oh so many years ago (at least 30,
if not more). She said that was "interesting."
Then we drove to Denny's in Woodland, 10 miles away for lunch
(cheapest sit-down restaurant I can think of that is also nice).

She often does not go to lunch at Atria, frequently tells me
she is sick to her stomach and can't think about food (as she did this
morning), but at the restaurant she managed to finish a whole bowl of
chicken noodle soup and both halves of a toasted cheese sandwich, which I
consider somewhat of a triumph....plus ice cream for dessert!
It was a pleasant lunch, answering the same questions over
and over again, but she seemed in good spirits and best of all she was
out of Atria for a few hours.
Melissa and Brianna, the Atria staff concerned with her care,
tell me that in memory care each resident is checked on every two hours.
Also, since her new mantra seems to be that she needs to be doing something
to help someone (instead of "I know I should be doing something but i can't
remember what"), they can probably find a job for her to do every so often
so maybe she will feel like she has a bit more purpose than she has had in a
very long time. At least that's my pipe dream for the day and it makes
me feel better.
On the way home, I stopped at the strawberry stand to buy
some strawberries

She didn't recognize Atria when I drove up, mainly, I think,
because I came in from a different direction than usual. She seemed at
a loss when I told her to get out of the car, handed her her keys and told
her that if she couldn't remember where she lived to ask someone. I
felt like a neglectful daughter.
Wednesday, April 26, 2017
New complaint
She seems to have dropped the "I know I'm supposed to be doing something ,
but I can't remember what" and has replaced it with "I just need to find
something to do to help people." While I know it's pointless, I tell
her that there are lots of opportunities at Atria, but she will have to
actually leave the apartment first. That's when she dials it back to
the original complaint...but it gives me something to talk with her
about. (If she continues this it's a good thing because it's not the
sort of thing that is likely to cause her anxiety)
There was NO dirty laundry to pick up, and some of the Depends were gone from her underwear drawer, so I guess she is using them, though that doesn't keep her from leaving feces stains on the sheets. I just cover them up. I can't expect the housekeepers to change the bed every day.
There was NO dirty laundry to pick up, and some of the Depends were gone from her underwear drawer, so I guess she is using them, though that doesn't keep her from leaving feces stains on the sheets. I just cover them up. I can't expect the housekeepers to change the bed every day.
Thursday, April 20, 2017
Is this lunch?
I went to Atria for lunch. Nothings works
better than a lunch at the funny farm to cheer one up. She woke up a
little more clear-headed than last time, but wandered around wearing only her
pajama tops for about half an hour, trying to straighten out a necklace n her
dresser for literally 30 minutes, butt flapping in the breeze. I finally
got her dressed and then to the dining room. If dementia has ever been
something she could hide, it no longer is. I don't know if the woman who
eventually joined us, Betty (someone I had not met before), has dementia or not,
but I suspect she does. My mother asked many times if this were lunch and
just lots of stuff like that. I did a lot of explaining what we were doing
today (flowers to the cemetery), who Paul was, etc. Nothing new.
Just the new normal, with a bit more nudity involved this time.
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